Communication
For those of you with kids- or especially stupid husbands- this may all be very obvious. I've been trying to create an image of what I'm experiencing as I talk to people with Cerebral Palsy. My job at P&G is all about communication. I've worked with people all over the world, and I understand the value of listening; seeking to understand as opposed to simply waiting for the next gap in the conversation so I can take over again. However, I am seeing a totally different set of challenges as I try and communicate now..
We all make jokes about call centres, following a menu of prerecorded choices ( If you want to order a takeaway, please press 1: If you want to take part in our customer feedback programme please press 2: To actually want to speak to a real person then please press 999 and we'll disconnect you). You wait (sometimes patiently) on the end of a line for “the next available assistant” and when you finally get someone on the end of the line, they are unfailingly polite but they follow a set protocol, which does everything except answer the question you need answering. This is of course worse when the call centre is in India because we struggle to understand their English. (I personally find the Scottish call centres a bit of a trial as well). Generally though, if you have the patience and speak very slowly, very clearly and really think about making the question as simple as possible, you can get what you need.(except the Amex system which is an invention of Satan and should be exorcised from any contact with humankind)
I spent a morning with two wonderful ladies (Barsha and Putul). They live together at a local Cheshire Care Home, but spend a couple of mornings a week at the IICP.. Both are non verbal, (they cannot speak) but boy do they like to talk. Both understand English and Bangla- (how is it that I struggle to master one language properly, and my best second language, German, is little more than beer ordering ability, whereas everyone here- irrespective of background, handicap or ability is bi- or even trilingual). Physically they have just enough control of their arms to use sign boards- letters or phrases on a board that they can point to to spell out what they want to say
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They would both ask questions of me by spelling them out, Barsha translating for Putul. In return, I could ask questions back, and slowly, sometimes frustratingly so, as they pointed to each letter we could decipher their responses. With Putul, I had to frame every question to be answeredYes or No- as she understands but doesnt write in English. Barsha is a poet and writes using a computer system that has been designed at the IICP. The programme is effectively an electronic sign board, and when a moving cursor is over a particular word or phrase, hitting a large mouse button can build up a piece of text.
The patience Barsha has to painstakingly type out what is in her head is amazing. She must find it incredibly frustrating having an active mind, without the physical capability to act on it. I have experienced a similar sort of frustration when trying to thread a needle. This maybe because I a boy...and needles and thread fall into the category of “pink jobs” so I'm not genetically programmed to be able to carry them out. I can do stuff with spanners and hammers, I do spiders in the bath and
disposing of the latest poor victim of the mouse trap. I have an innate knowledge of how to wire up a stereo system. (These are of course blue jobs). For me, trying to get that big fat hairy rope into that itty bitty little hole on the needle, keep it there, and then do something useful with it after that does not involve my finger bleeding ....lets just say that when I go to purgatory, Lucifer has me threading a needle for eternity.
They would both ask questions of me by spelling them out, Barsha translating for Putul. In return, I could ask questions back, and slowly, sometimes frustratingly so, as they pointed to each letter we could decipher their responses. With Putul, I had to frame every question to be answeredYes or No- as she understands but doesnt write in English. Barsha is a poet and writes using a computer system that has been designed at the IICP. The programme is effectively an electronic sign board, and when a moving cursor is over a particular word or phrase, hitting a large mouse button can build up a piece of text.
The patience Barsha has to painstakingly type out what is in her head is amazing. She must find it incredibly frustrating having an active mind, without the physical capability to act on it. I have experienced a similar sort of frustration when trying to thread a needle. This maybe because I a boy...and needles and thread fall into the category of “pink jobs” so I'm not genetically programmed to be able to carry them out. I can do stuff with spanners and hammers, I do spiders in the bath and
disposing of the latest poor victim of the mouse trap. I have an innate knowledge of how to wire up a stereo system. (These are of course blue jobs). For me, trying to get that big fat hairy rope into that itty bitty little hole on the needle, keep it there, and then do something useful with it after that does not involve my finger bleeding ....lets just say that when I go to purgatory, Lucifer has me threading a needle for eternity.
Knitting at the abilympics.... sitting on the floor de rigeur..
Abilympics
Last week was the regional Abilympics, held at the IICP but open to all disabled people from the region. They ran over 40 competitions to test the “abilities” of the 210 participants in everything from furniture making and painting to computer programming. The week before had been general panic stations as final arrangements were made (the government department sponsoring the event had not actually sent a cheque because of the impending elections) , and it was all hands on deck for the actual competition. I was put to work as part of the awards team, to build a database of all participants and their events and then record the results as each one was completed. Hence I spent three days hunched over a computer trying to make sense of the names scrawled on the entry sheets- and marry them up with the often differently spelt names on the judges marking sheets. I fortunately had the help of one of the B.Ed students at IICP- Kavita- who was instruicted to work with me, and was not permitted to leave me without express permission from the boss- even though I kept trying to shoo her away when there was nothing to do. There is a great respect for authority here- something I rarely experience at work (and to be honest I'm glad about that- My guys all realise I know nothing and therefore make their own decisions. They indulge me from time to time..just to keep me sweet, but in general a healthy disrespect for authority and using common sense is the way I prefer to work)
Last week was the regional Abilympics, held at the IICP but open to all disabled people from the region. They ran over 40 competitions to test the “abilities” of the 210 participants in everything from furniture making and painting to computer programming. The week before had been general panic stations as final arrangements were made (the government department sponsoring the event had not actually sent a cheque because of the impending elections) , and it was all hands on deck for the actual competition. I was put to work as part of the awards team, to build a database of all participants and their events and then record the results as each one was completed. Hence I spent three days hunched over a computer trying to make sense of the names scrawled on the entry sheets- and marry them up with the often differently spelt names on the judges marking sheets. I fortunately had the help of one of the B.Ed students at IICP- Kavita- who was instruicted to work with me, and was not permitted to leave me without express permission from the boss- even though I kept trying to shoo her away when there was nothing to do. There is a great respect for authority here- something I rarely experience at work (and to be honest I'm glad about that- My guys all realise I know nothing and therefore make their own decisions. They indulge me from time to time..just to keep me sweet, but in general a healthy disrespect for authority and using common sense is the way I prefer to work)
The chess tournament was held between people with physical disabilites- and in this picture a visualy impaired guy (using a board that he felt his way around) was wiping the floor with his opponent ( his disability was physical but he could at least see what he was doing!)
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In addition to my duties at the computer I was also the judge for some of the computer courses (yep, I am a computer expert now.....), anfd also had enough time to wander about and see how good some of the work was. The winners of the events proceed to the national finals, and hence to the international finals in Korea.
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In addition to my duties at the computer I was also the judge for some of the computer courses (yep, I am a computer expert now.....), anfd also had enough time to wander about and see how good some of the work was. The winners of the events proceed to the national finals, and hence to the international finals in Korea.
The furniture making contst required these guys to make a computer desk in 3 hours....


